Built by Rare Families

Your Child's
Medical Memory
for the Rare Journey.

A voice-first memory that connects records, tracks daily life, and detects subtle changes—so you know what to do next, even without a diagnosis.

HIPAA Ready AES-256 Encrypted
9:41
Contradiction Detected
Just now

Dr. Chen's note (Jan 10) states: "Seizures stable"

Your voice logs (Jan 12-15) report: "4 focal seizures this week"

Monitoring
2h ago

No new clinical literature matches "KCNQ2 c.637C>T"

847 sources scanned

PDF Records Linked
Vitals Tracked

Medical systems see snapshots.
CareGene sees the story.

Rare conditions demand continuity. We connect specialists, records, and daily life into one medical memory you can trust.

The Snapshot Trap

Specialists see isolated moments, not the full history behind today's symptoms.

The Narrative Tax

Parents spend half of every appointment re-explaining a story that should already be remembered.

Data Silos

Labs, genetic reports, and daily logs live in separate places, hiding meaningful changes.

01

The Evidence-Linked Records Hub

Transform fragmented PDFs and EHR data into a structured clinical knowledge graph. You control granular privacy governance—redact sensitive PHI before sharing.

Knowledge Graph Source Provenance
02

The Delta Engine (Timeline)

Automatically detect clinical shifts. Track lab trends, medication efficacy changes, and identify contradictions between specialist notes and observations.

CareGene Intelligence
03

The Ambient Clinical Diary

Capture life between appointments using ambient voice to log regressions, gait shifts, or mood changes in real-time. Smart prompts adapt to your child's diagnosis.

Genetic_Results.pdf
Neurology_Notes.pdf
Processing Clinical Data...
Nov 12 Medication Increased

Keppra -> 750mg

Oct 05 Genetics Result

WES: KCNQ2 Variant

"Noticed any sleep changes since Tuesday?"

The Sentinel Moat

Ethical Intelligence &
Radical Transparency.

The Sentinel Refusal

Honesty over Confidence. If medical literature is inconclusive, CareGene says so. We prioritize safety over false AI confidence.

Model Isolation

Your data is never used to train global AI models. Your child's medical memory is a "Closed-Loop" system.

Zero-Retention

Deleted records are purged instantly. No shadow data.

Bank-Grade Hardening

HIPAA-aligned encryption (AES-256) is the floor, not the ceiling.

HIPAA Environment Launching March 31, 2026

Transition from Recall to Insight.

Most parents of children with rare conditions are "Walking Encyclopedias." It's time to outsource the memory so you can focus on the care.